Welcome! This blog is named after a rare brain anomaly that my son was diagnosed with when he was 9-months old. It is a neurodevelopmental disorder. He is my miracle child! He has a YouTube Channel that I often feature here whenever he uploads a new one. Please visit it, click on his videos, and subscribe if you have a YouTube account. Spread the word. Thanks.
Selective Dorsal Rhizotomy or SDR
We are absolutely excited! The long journey to getting this surgery is finally here. We will definitely get it in September. We have 2 possible dates but we'll probably get the later one. My son is excited to see if his right arm will have more functionality.
Click on this link St. Louis SDR with Dr. Park to learn more about this life-changing surgery for people with cerebral palsy caused by schizencephaly or other neurodevelopmental disorders.